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For our son, we walked 100,000 feet in June for clubfoot awareness month
We found out that Oakley had bilateral CTEV at our 20 week scan. I didn’t know much about talipes and my husband had never heard of it before. My husband worried that it meant that Oakley may never...
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Born with Bilateral Knee Dislocation and Bilateral CTVE
Willow was born with Bilateral Knee Dislocation and Bilateral Congenital Talipes Equinovarus also known as talipes or clubfoot. She is a very rare case; being 1 in 100,000 for her knees and 1 in 1000...
View ArticleUnderstanding a painful, little-known condition in children: Perthes disease
Written by Loredana Guetg-Wyatt, CEO of Steps Charity Worldwide for Nursing in Practice Children quite often turn up at the school nurse’s office, or are brought to the local GP practice, with pain...
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Jacob’s Perthes Story
Jacob developed Perthes Disease at 6 years old when he noticed sudden pain in his right hip and began to limp. This is Jacob’s Perthes story: Our local hospital was not very informed on the disease,...
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Announcing our new ambassador
We are thrilled to announce our new ambassador, Maggie Alphonsi MBE. Maggie is the face of international women’s rugby, having played rugby for England an impressive 74 times and even won the World...
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Thomas’s Story
The most levelling realisation as a parent is that everybody, every child, has something going on at some point. For me, I was born with two clubbed feet in 1978. It wasn’t a total surprise when I...
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Fred’s Story
When Fred was 3 he started complaining of pains in his left leg, at first we thought he’d pulled a muscle. He was a typical 3-year-old boy running and jumping off everything. He kept complaining,...
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Jay’s Story
In the summer of 2020, Jay started getting pains in his leg after playing out with his friends, he was developing a limp so we knew something wasn’t right. After discussions about growing pains and...
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Nick’s Story
My story almost never even had a beginning, it could have been very close to just being an end. A mix up with the months of my due date all the way back in1991 led to me being born on the 20th of...
View ArticleElise’s volunteer story update
I have been on very long health battle since I last wrote. Unfortunately, due to increased hip pain, I was unable to sit my A-Levels last year; but my school were great and arranged for me to re-sit...
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Isabelle’s Story
Isabelle was born with bilateral hip dysplasia meaning both her hips were fully dislocated. She wasn’t breech, nor do we have any family history of hip problems so when the doctor identified her...
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Imogen’s Story
I was born with severe club foot in both feet in 1995. I was seen by my consultant (Dr Colin Ogilvie) within 24 hours of being born. Dr Ogilvie said he ‘hoped’ they would get me to walk but it was not...
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Ruby-Grace’s Story
I was diagnosed with hip dysplasia just two days after I was born. At first the doctors thought it was only affecting one hip, but a scan showed it was both of my hips. When I was one month old, I was...
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Announcing our new ambassador
We are thrilled to announce our new ambassador, Maggie Alphonsi MBE. Maggie is the face of international women’s rugby, having played rugby for England an impressive 74 times and even won the World...
View ArticleClik here to view.
Thomas’s Story
The most levelling realisation as a parent is that everybody, every child, has something going on at some point. For me, I was born with two clubbed feet in 1978. It wasn’t a total surprise when I...
View ArticleClik here to view.
Fred’s Story
When Fred was 3 he started complaining of pains in his left leg, at first we thought he’d pulled a muscle. He was a typical 3-year-old boy running and jumping off everything. He kept complaining,...
View ArticleClik here to view.
Jay’s Story
In the summer of 2020, Jay started getting pains in his leg after playing out with his friends, he was developing a limp so we knew something wasn’t right. After discussions about growing pains and...
View ArticleClik here to view.
Nick’s Story
My story almost never even had a beginning, it could have been very close to just being an end. A mix up with the months of my due date all the way back in1991 led to me being born on the 20th of...
View ArticleElise’s volunteer story update
I have been on very long health battle since I last wrote. Unfortunately, due to increased hip pain, I was unable to sit my A-Levels last year; but my school were great and arranged for me to re-sit...
View ArticleClik here to view.
Isabelle’s Story
Isabelle was born with bilateral hip dysplasia meaning both her hips were fully dislocated. She wasn’t breech, nor do we have any family history of hip problems so when the doctor identified her...
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